It is with a heavy heart that I forward this appeal to help my god-daughter, Janavi Held.
A graduate of Goddard College where she studied poetry, photography and media, Janavi Held was an up-and-coming writer and photographer when she was stricken at age 46 with an illness that now, six years later, is still debilitating her so that she cannot walk up or down stairs without help, she can only walk short distances around the house, and can only stand up for less than a minute at a time, sit in a car, or cook. She made the usual traditional medical rounds, tests, consultations and treatments, plus sessions with a myriad of healers and herbal remedies, but to no avail. Her condition has been labeled Regional Pain Syndrome and Internal Adhesions, but nothing has been able to ease her constant pain or progressive weakness.
Last fall her condition worsened, the pain increased and her weight plummeted to 95 pounds. After an ambulance ride to the hospital, a forty-eight hour stay and a whole battery of tests, she left the hospital in worse pain; they could do nothing for her.
Twenty-six months ago her sister Sue took Janavi her to her home in Colorado and set up a bedroom for her. Sue works full time but devotes much of her time to Janavi’s care. Because of Janavi’s worsening condition (she can barely walk at all, is in constant pain, and using her arms has become very painful as well), they have been forced to pay a home care agency to take care of Janavi and support Sue with other household tasks. In order to pay for home care and cover incidental expenses, as well as uncovered medical expenses, they need at least $15,000 a year. Sue’s salary cannot cover this additional cost. The only coverage Janavi has is Medicaid.
Janavi is such a talented, spiritual soul. During these years of her illness, Janavi took refuge in her practice of Bhakti yoga which she had embarked on when she was nineteen. Her faith and persistence enabled her to write Letters to My Oldest Friend, a book of poetry and photography. ( https://www.amazon.com/Letters-Oldest-Friend-Janavi-Held/dp/0986240338). This book of poems and photography that she produced in the years since her disease struck are so beautiful. In 2017, two of her poems were shortlisted for the prestigious Hamilton House International Poetry Prize and where included in a book entitled Eternity. https://www.hammondhousepublishing.com/online-store/ETERNAL-Award-Winning-Poetry-p97059266
Now, she can barely type or read because of the persistent pain. These sisters, whose parents are gone, need help in order to survive.
Please reach into your heart and give what you can. Forward this appeal to your friends and post the fundraiser link on your Facebook pages. https://www.gofundme.com/saving-janavi
Thank you. Feel free to write me with any questions (email@example.com). I am sending this through Janavi’s email so she can reach out to her supporters and friends.
Janavi refers to me as “her fairy godmother.” Oh how I wish I had the power to disappear her pain.